Today is the second annual CE awareness day in North America support by ACENA. I hope it is going to be a good one for CE.
ACENA’s goal was to put out one common message about CE across North America. I love this idea and the templates showed that a lot of thought and work went into those. However, I did have to take out some of the brain stuff to stay true to myself. I always have been or at least tried to be a do-as-you-preach-kind-of-person. So I guess the message was more common-ish: that CE needs more awareness and support in order to help more children and adults with movement disorders and their families.
So I tried my part to raise more awareness of CE in BC for that day. I modified the ACENA newspaper template and send it out to a couple of newspapers, TV and radio stations as well as passing on a few flyers to local schools. So far I haven’t heard anything back and I am not too surprised about it either. Making contact with the press takes time and perseverance. Someone told me last weekend its important to keep sending those information so they become more aware of you and one day it might just work out.
ACENA was encouraging to send it out to your local government to get more support from this side. Unfortunately I joined ACENA too late this year to make that happen. Next year might be a complete different story.
It’s also pretty hard with having no consistent group running at the moment. So open houses are out of the question. But with spring camp approaching quickly, we might be able to arrange something.
It has been a learning curve putting those things together too. I guess it is not quite your usual conductor stuff to put out press releases or at least it has never been for me. I feel more confident to do this at a quicker pace the next time it comes around.
I guess raising awareness of CE is a one-step at the time process and I learned to accept that I have time to make this happen slowly out here. In fact a lot of people out here have encouraged me that good things take time and the quick fixes usually don’t last. As I am not going anywhere, I have the time to see it grow. Quite a conductive process in itself.
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